West Sussex Carers Online title with a colourful picture of a paperchain of people
Funded by West Sussex County Council logo
facebook logo
Valid XHTML 1.0 Transitional Valid CSS!

Children with special needs

Your concerns whilst looking after a child with special needs are likely to include:·
  • Your child's health
  • Your child's education and whether it is relevant to him/her
  • Your own ability to provide care for your child
  • The rest of your family's needs; the impact on the lives of any other children (have a look at the Young Carers section)
  • What will happen as your child grows up.

Diagnosed conditions which might be associated with the person you care for include:
  • Attention Deficit Hyperactivity Disorder (ADHD)
  • Autism
  • Cerebral Palsy
  • Hydrocephalus
  • Physical disabilities
  • Spina Bifida
  • and so on.

There are a wide range of services which may help, which include:·
  • Counselling
  • Help and advice with educational concerns
  • Home teaching service
  • Leisure activities for people with special needs
  • Parenting support
  • Respite care
  • Support groups


Small envelope representing information You can get more information from:

Some facts about Autism that everyone should be aware of (3/6)
Autistic children tend to have habits that they repeat obsessively, like rocking. Children with ASD have a unique effect on everyone who is diagnosed with it. The intensity of the situation may range from mild to an extremely severe and chronic condition. Individuals with ASD manifest different symptoms, at various stages of development with varying severity. Article source: http://EzineArticles.com

University of Bedfordshire survey for carers of people with autism (added 11.3.13)
Carers of people with autism are wanted for an online survey for a dissertation. The survey is looking at the effects of social support and transition from childhood to adults services has on their psychological wellbeing. If you are, or know of, any parents/carers of individuals with autism then your opinions would be appreciated. To complete the survey, or to contact the university, go to: bedshealthsciences.eu.qualtrics.com

An Ordinary Life - Foundation for People with Learning Disabilities has launched a free interactive booklet to help children with complex health needs live 'An Ordinary Life' and to help families make sure their child is at the heart of their own care. Download the booklet from http://fpld.org.uk

Planning for Life After 16 factsheets (added 10.4.12)
Afasic’s factsheets provide information for parents of young people with speech and language impairments in their teens and twenties. Download the sheets from www.afasicengland.org.uk

ADHD Parenting: How to control your anger (added 6.1.12)
Every parent has an anger button that can very easily be pressed by their ADHD children (and sometimes, their other children too). How do you keep yourself from getting angry with your child? Read the article from Dr Yannick Pauli for some tips. http://EzineArticles.com

Challenges of ADHD - How to deal with ADHD tantrums (added 3.1.12)
The primary symptoms of ADHD are inattention, impulsive or erratic behavior, and hyperactivity. Children with ADHD are typically impatient and become bored and/or frustrated easily. There is no 100% guidebook that has all the answers when it comes to how to deal with ADHD tantrums, but this article may give some helpful tips. Source: http://EzineArticles.com/6785894

Coping with a new ADHD diagnosis (added 18.10.11)
Parents of children newly diagnosed with ADHD often feel overwhelmed by emotion and at a loss as to what to do next. Read Dr Yannick Paul's article on Ezine which may help. Source: http://EzineArticles.com

ADHD Parenting: Setting limits for children (added 10.10.11)
Parents of children with ADHD often find they have strong-willed children who repeat mistakes, argue back and test their parents' patience. It's not uncommon for parents to feel frustrated and at a loss with what to do; they feel like 'bad parents' or they feel that their child is acting up on purpose. In most cases, neither is true. Ezine Articles has some ADHD parenting tips that will help you set limits and establish effective discipline. Read Dr Yannick Pauli's article at http://EzineArticles.com

Special Educational Needs (SEN) – a guide for parents and carers
This 64 page guide published by the Department for Children, Schools and Families can be downloaded from http://media.education.gov.uk

www.livingwithadhdchildren.com - a place to find information about ADHD. Whether you are looking to get information on the best tips or stress techniques or maybe you are looking for ways of dealing with your ADHD child this website has information to make the right choice when you are in need of ADHD ideas.

www.adders.org - information and practical help for adults and children affected by ADHD

www.allaboutspecialneeds.com - blog with useful information for individuals or organisations involved in special needs or disabilities

www.livingwithadhd.co.uk - a comprehensive resource for anyone living with, or who is affected by, ADHD

www.netbuddy.org.uk - Netbuddy is an online resource for carers, parents and professionals working with learning disability. It offers practical tips and suggestions on a range of issues, from coping with challenging behaviour to rewards and routines

www.cafamily.org.uk - Information from Contact A Family about caring for a child or young person with Attention Deficit Hyperactive Disorder (ADD/ADHD)

www.special-needs-kids.co.uk - Special Needs Kids is an information directory and shopping site to help parents and carers of children with special needs

www.healthtalkonline.org - has sections on 'Life on the Autistic Spectrum' and 'Parents of Children with Autism'


Question mark There are people who can help:

Crossroads Care South Central - provides home respite or short breaks to disabled children and young people aged 5-19 years, for up to four hours a fortnight, for visits, creative activities, sports, hobbies and social get-togethers, etc. The aim is to empower disabled children and young people to fulfil their potential and to live as ordinary a life as possible. For more details contact the Aiming High Team at Crossroads Care, Tel: 01903 790270, email [email protected] or visit www.crossroadscare-sc.org

West Sussex Carers Support Services



If you are having trouble finding the information you need on this website you could try using one of the following search options:

Local Search
You can use this facility to search the Carers Online database for organisations in West Sussex that may be able to help you.

Search this Site
You can use this facility to search the website for a particular keyword or phrase.

Top of page | Disclaimer | Privacy Statement |     Last updated date: 03 Jun 2013

In partnership with
ICIS : information for life
Carers Support West Sussex
Carers UK
This site is maintained and developed by ICIS, 35 Worthing Road, East Preston BN16 1BQ