Site guide
Other diagnosed conditions
The range of conditions and difficulties experienced by people being cared for is extremely long. Whatever the condition, help and support is available via the West Sussex Carers Support Services (formerly West Sussex Carers Network) and in many circumstances from an organisation set up to support people coping with a specific illness or condition, such as.Alzheimer's
www.alzheimers.org.uk - The Alzheimer's Society is one of the UK's leading care and research charities for people with all forms of dementia and their carers
www.alz.co.uk/carers/ - Alzheimer's Disease International is a website aimed at those who care for people with dementia.
Ankylosing Spondylitis
www.nass.co.uk - National Ankylosing Spondylitis Society (NASS) website
Arthritis
www.arthritiscare.org.uk - Arthritis Care aims to empower people to take control of their arthritis and their lives
www.kidswitharthritis.org - for parents and professionals, with peer-reviewed and other articles and factsheets
Asthma
www.asthma.org.uk - the National Asthma Campaign's website gives information about asthma and the work of the charity
Autism
www.nas.org.uk - National Autistic Society (NAS) includes information about autism and Asperger syndrome, and about the support and services available in the UK
Cancer
www.cancerresearchuk.org - the Cancer Research UK website is for anyone who wishes to know more about cancer, or to play a part in their vision to cure cancer faster
www.clicsargent.org.uk - charity supporting children and young people with cancer and their families
www.macmillan.org.uk - Macmillan Cancer Support helps improve the lives of people living with cancer and their families and carers
www.cancervive.org.uk - self-help group for family, friends and colleagues of cancer patients
Cerebral Palsy
www.scope.org.uk - Scope is a national disability organisation focused on people with cerebral palsy. Runs local services and support
Chromosome disorders
www.rarechromo.org - Unique is a charity that produced information about rare chromosome disorders
Cystic Fibrosis
www.cftrust.org.uk - the Cystic Fibrosis Trust funds medical and scientific research aimed towards understanding, treating and curing Cystic Fibrosis
Dementia
www.alzheimers.org.uk - The Alzheimer's Society is one of the UK's leading care and research charities for people with all forms of dementia and their carers
www.dailydementianews.com - covers news articles that can be found on the web relating to Alzheimer's disease, Vascular dementia, Lewy Bodies dementia, Fronto-temporal dementia, early onset dementias, care-giving for dementias and anything relating to dementia-causing conditions.
www.familydementiahelp.org - provides support and practical advice to families caring for someone with dementia
Diabetes
www.diabetes.org.uk - Diabetes UK is a charity working for people with diabetes. They fund research, campaign and help people to live with the condition
Downs Syndrome
www.downs-syndrome.org.uk - Down's Syndrome Association website
Dyspraxia
www.dyspraxiafoundation.org.uk - the Dyspraxia Foundation supports individuals and families affected by this condition
Eating disorders
www.b-eat.co.uk - national charity providing information, help and support for people affected by eating disorders such as anorexia, bulimia nervosa and binge eating
www.eating-disorders.org.uk - National Centre for Eating Disorders
Eczema
www.eczema.org - the National Eczema Society is dedicated to the needs of people with eczema, dermatitis and sensitive skin
Encephalitis
www.encephalitis.info - the Encephalitis Society aims to improve the quality of life of all people directly and indirectly affected by this condition
Epilepsy
www.epilepsy.org.uk - the Epilepsy Action (formerly British Epilepsy Association) website contains information about epilepsy
www.epiweb.org - information for parents and carers of children with epilepsy
Fibromyalgia
www.fibromyalgia-support.net - website and discussion forum, with access to more support and knowledge, including information from a carer's perspective
Heart conditions
www.bhf.org.uk - British Heart Foundation website
www.congenital-heart-defects.co.uk - website providing information on CHD and raising awareness of the condition
Hodgkin's Disease
www.lymphoma.org.uk - Lymphoma Association website providing support and information
Huntington's Disease
www.had.org.uk - the Huntington's Disease Association offers support, information and advice
Hydrocephalus
www.sasbah.org.uk Sussex Association for Spina Bifida and Hydrocephalus which provides local services and support
Kidney disease
www.britishkidney-pa.co.uk - British Kidney Patients Association supports kidney patients, their families and carers
www.kidneypatientguide.org.uk - online information for kidney patients and those who care for them
Learning difficulty
Caring for someone with a learning difficulty
Lung disease
www.lunguk.org - the British Lung Foundation provides information and support to people with lung disease
Lymphoma
www.lymphoma.org.uk - Lymphoma Association website providing support and information
Mental health problem
Caring for someone with a mental health problem
Motor Neurone disease
www.mndassociation.org - the Motor Neurone Disease Association website is a resource for people with the condition and those who care for them
Multiple Sclerosis
www.mssociety.org.uk - information about caring for someone with this illness from the Multiple Sclerosis Society website
Osteoporosis
www.nos.org.uk - the National Osteoporosis Society (NOS) is the national charity dedicated to improving the diagnosis, prevention and treatment of this fragile bone disease
Parkinson's Disease
www.parkinsons.org.uk - the Parkinson's Disease Society provide support, advice and information to people with Parkinson's, their carers, families and friends, and to health and social services professionals involved in management and care
Schizophrenia
www.rethink.org - Rethink (formerly National Schizophrenia Fellowship) works to help people affected by severe mental illness, to recover a better quality of life
Spina Bifida
www.sasbah.org.uk - Sussex Association for Spina Bifida and Hydrocephalus which provides local services and support
Stoma care
www.ostomylifestyle.org - information, advice and support on bowel or bladder surgery for patients, families and carers
Stroke
www.stroke.org.uk - the Stroke Association is the national organisation for people who have had a stroke and their families
This list is far from complete. You may be looking after someone with an illness not listed here.
If the condition is very rare you may get help and advice from the Rare Disorders Alliance www.cafamily.org.uk which provides information to help provide care for someone with a rare disorder.
You can get more information from:
For more information on organisations that may be able to help with specific concerns:Call the ICIS enquiry line for help by telephone 0800 859929 (open Mondays to Fridays 10am - 12.30pm and 1.30pm - 4pm)
Fax: 01903 777601
email: [email protected]
Or visit the ICIS website website
There are people who can help:
West Sussex Carers Support Services (formerly West Sussex Carers Network)
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If you are having trouble finding the information you need on this website you could try using one of the following search options:Local Search
You can use this facility to search the Carers Online database for organisations in West Sussex that may be able to help you.
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