Site guide
Undiagnosed conditions
Sometimes the person you are caring for does not have a diagnosis for the difficulties he / she is experiencing. In many cases this 'not knowing' can add a great deal of stress and can make it harder to get the right help, advice and support.Conditions without diagnosis can appear as:
- Behavioural difficulties
- Emotional difficulties
- Breathing difficulties
- Physical conditions with no discernable cause
Your GP may be able to help. Even if medical specialists cannot find causes they may be able to help the person you are caring for in reducing the severity of the symptoms. Support may be available for:·
- Pain control
- Mobility
- Visual assistane
- Hearing assistance
- Palliative care
- Emotional Wellbeing
You can get more information from:
www.cafamily.org.uk - Contact A Family have a factsheet about 'Living without a diagnosis'www.undiagnosed.org.uk - Website of SWAN (Syndromes Without A Name), which aims to support children with an undiagnosed condition
www.rarechromo.co.uk - Website for Unique, the Rare Chromosome Disorder support group
For more information on organisations that may be able to help with specific concerns:
Call the ICIS enquiry line for help by telephone 0800 859929 (open Mondays to Fridays 10am - 12.30pm and 1.30pm - 4pm)
Fax: 01903 777601
email: enquiries@icis-info4life.org.uk
Or visit the ICIS website
There are people who can help:
West Sussex Carers Support Services (formerly West Sussex Carers Network)
Search
If you are having trouble finding the information you need on this website you could try using one of the following search options:Local Search
You can use this facility to search the Carers Online database for organisations in West Sussex that may be able to help you.
Search this Site
You can use this facility to search the website for a particular keyword or phrase.